So I had an assignment to write about if I could be anyone in the world for an hour who would I be and why and what would I do during my hour. I thought I'd share...
If I had the opportunity to be any person in the world for an hour I would without a doubt choose to be my son. My son Tyler is 10 and three quarters years old and has high functioning autism. This makes it very difficult for him to communicate the way he feels or what is bothering him to me or his teachers. He is very verbal he just has difficulty explaining things especially if they are upsetting to him.
Tyler has many sensory issues. A simple tap on the shoulder to you or I to him is a hard hit or a punch, it seems to genuinely physically hurt him also referred to as interoceptive senses. He also has difficulties relating where is body is in relation to other things or people; for example walking in line at school is very difficult for him. He senses someone behind him and feels scared and even threatened because he cannot tell how close they are to him, this can sometimes lead to him having a meltdown or lashing out. We have learned that having him at the end or beginning of the line at school is the best for him.
Tyler also has many issues with handwriting; however he is an amazing artist. I wish I could show you some of his drawings, perhaps later. Handwriting and art come from different areas of the brain so he has no issues with drawing it seems very therapeutic for him. He has a difficult time explaining his difficulty with handwriting and says it makes him nervous. As his mother I can see it makes him anxious and frustrated. If I could only be him while attempting to accomplish a handwriting assignment I would possibly fully understand what the issues are and be able to fully help him overcome them.
If I were him for an hour I would want to be at school for at least half of the time. Tyler has a very difficult time verbalizing his school day to me. Also it would be interesting to see how the teachers treat him and his peers as well and how that impacts him mentally. I would also want there to be a handwriting assignment involved so I could feel what he feels when he gets so anxious so I could try to help him later on as his mother. Lastly I would want to spend some time as him with me sometimes he gets very frustrated with me and I would find it very interesting to see myself through his eyes.
So my choice is easy if for an hour I could be my son I would give anything to do so. I doubt an hour would give me enough time to understand even a quarter of how life appears to him. I feel this experience would make me a better mother, caregiver and person. Maybe I could learn just one simple thing to make his life a little easier and that would mean the world to me.
Thursday, May 21, 2009
Wednesday, May 20, 2009
My son and my instant messenger
So I go out to the store for like 5 to 10 minutes today and yes I left my son at home. He's very smart and knows the upstairs neighbors and has a phone to call people on etc. Well he was on my computer and I guess I left my yahoo im convo with my friend Jesse open and he saw her sign back on so he says this and I am quoting here:
" celeste is not here at the moment, she went to the store, her son (thats me) willbe using the computer now"
LOL he typed at the moment he's so cute! He even used parenthesis and commas oo he makes his momma proud!!
" celeste is not here at the moment, she went to the store, her son (thats me) willbe using the computer now"
LOL he typed at the moment he's so cute! He even used parenthesis and commas oo he makes his momma proud!!
A good morning, mostly
With my son you never know what you are going to get when he wakes up. I plan on going into this in depth at some point. Today we over slept a bit. He fell asleep on the foot of my bed cuddling my cat Patrick at around 7 last night and I tried to wake him to give him a bath (trust me he needed it shew). Well that didn't work out so well so I set the alarm for early and ended up hitting the snooze button 5 too many times.
We wake up with about 25 minutes to get ready if that. He hates being rushed. I'm afraid to even wake him, he has an ear infection, but he has to go to school. So I wake him up and he actually gets up after one time of me telling him it's time to get up! He eats his breakfast takes a quick bath and gets dressed and seems to be in a pretty good mood!! He's being sweet and making jokes and laughing. I don't question this rare occurrence I just enjoy it, I'd hate to ruin it.
We wake up with about 25 minutes to get ready if that. He hates being rushed. I'm afraid to even wake him, he has an ear infection, but he has to go to school. So I wake him up and he actually gets up after one time of me telling him it's time to get up! He eats his breakfast takes a quick bath and gets dressed and seems to be in a pretty good mood!! He's being sweet and making jokes and laughing. I don't question this rare occurrence I just enjoy it, I'd hate to ruin it.
Tuesday, May 19, 2009
Just starting this thing...
Okay so I am just starting this up and don't have a huge amount of time right now. So I am just gonna post something short and sweet. The main purpose of this for me is to post I guess our daily trails and problems sometimes they are humorous sometimes they leave me in tears. On our more quiet days I will try to post past events and a bit of history, like the 2 years of poo we went through with his school to even get him evaluated for an IEP!! No I am not putting all the blame on the school I was new at all this and when I finally got it all figured out and got in their face with the right info it got done really quick! Anyway that's a story for another day.
My son is 10 almost 11 and has high functioning autism so most people think he's just a typical kid which makes his outbursts or meltdowns that much harder to deal with in public. Thankfully I have grown to the point where I pity the ignorant people staring and whispering about my child or my parenting sometimes I say things like "He has autism, what's your excuse lady?" hehehe. Anyway I'll bbl gonna go hose of the kiddo (no not literally!) and get him into his bed time routine!
My son is 10 almost 11 and has high functioning autism so most people think he's just a typical kid which makes his outbursts or meltdowns that much harder to deal with in public. Thankfully I have grown to the point where I pity the ignorant people staring and whispering about my child or my parenting sometimes I say things like "He has autism, what's your excuse lady?" hehehe. Anyway I'll bbl gonna go hose of the kiddo (no not literally!) and get him into his bed time routine!
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